Debra Of America

Debra of America is a non-profit organization that offers resources to patients and families affected by Epidermolysis Bullosa. It offers legal aid, a patient registry, patient care conferences, funds, internship programs, and more. The organization aims to improve the quality of life for EB patients, their families, and their caregivers; encourage and support research to find a cure and treatments for EB; act as an EB information resource for institutions, physicians, and healthcare professionals; provide education and promote political advocacy for those with EB; assist those who suffer from EB in finding medical resources, social support networks, and genetic counseling; and develop and manage proactive programs that alleviate the daily stress inherent in EB patients through practical advice, guidance, and support. Debra of America was founded in January 1980 and is based in New York, United States.

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