Nord
Nord's email is jhuron@rarediseases.org
and
Nord's phone number is +1 203 744 0100
.
In the late 1970s and early ‘80s, patients and families living with rare diseases felt alone and forgotten. Very little was being done to study these diseases or develop treatments. Leaders of several rare disease patient organizations formed an ad hoc coalition to focus attention on this problem. That coalition became NORD and was instrument in the Orphan Drug Act of 1983, which created financial incentives for the development of treatments for rare diseases. Since then, NORD has served as the hub of the rare disease community, leading efforts to connect patients and p...
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In the late 1970s and early ‘80s, patients and families living with rare diseases felt alone and forgotten. Very little was being done to study these diseases or develop treatments. Leaders of several rare disease patient organizations formed an ad hoc coalition to focus attention on this problem. That coalition became NORD and was instrument in the Orphan Drug Act of 1983, which created financial incentives for the development of treatments for rare diseases. Since then, NORD has served as the hub of the rare disease community, leading efforts to connect patients and patient organizations with other stakeholders and driving progress for all. View the timeline below of highlights through the years. For many years, people with rare diseases walked alone. Patients and their families coped with daunting medical and financial issues with few resources and no one to guide the way. Then, a small group of patient advocates formed a coalition to unify this community and mobilize support to pass the Orphan Drug Act. In 1983, the coalition became NORD, the National Organization for Rare Disorders. For more than 30 years, NORD has led the way in voicing the needs of the rare disease community, driving supportive policies, advancing medical research, and providing patient and family services for those who need them most. Read the full story of NORD and the rare disease movement here. NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
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Industry | Environmental Services | |
Location | Nyborg, Syddanmark, Denmark | |
Employees | 56 | |
Founded | 1971 |
HQ | 55 Kenosia Avenue | |
Phone | +1 203 744 0100 | |
jhuron@rarediseases.org | ||
Competitors | Veolia, Bureau Veritas Group, Suez, Waste Management, Republic Services, Self Employed, |
Industry | Environmental Services | |
Location | Nyborg, Syddanmark, Denmark | |
Employees | 56 | |
Founded | 1971 | |
linkedin.com/company/ekokem-a-s | ||
HQ | 55 Kenosia Avenue | |
Phone | +1 203 744 0100 | |
jhuron@rarediseases.org |
Top Competitors for Nord
Nord Questions
Where are Nord's headquarters?
Nord's headquarters are in 55 Kenosia Avenue
What is Nord's phone number?
Nord's phone number is +1 203 744 0100
How many employees are working in Nord right now?
Nord has
56 employees.
View the Email and Phone Numbers for all 56 working at Nord.
What is Nord's industry?
Nord's industry is
Environmental Services
Who are Nord's top competitors?
Nord's top competitors are
Veolia
,
Bureau Veritas Group
,
Suez
,
Waste Management
,
Republic Services
,
Self Employed
What is Nord's email address?
Nord's email address is jhuron@rarediseases.org
What are Nord's categories?
Nord's categories are Health Care, Medical
What is Nord's location?
Nord's location is
Nyborg, Syddanmark, Denmark
When was Nord's founded?
Nord's founding year is 1971
What is Nord's current status?
Nord's current status is operating